Tag Archives: Dementia and the power of words

Reading, Writing and Dementia

Dementia haunts us as we age, more than almost any other affliction. Losing the ability to be coherent, to read books, to tell the story of your life, these things make us fearful. But as we pass those milestones, 50, 60, 70 and on, which of us has not thought of what might happen? And as we experience those so-called senior moments, who has not wondered if they are increasing in frequency? At the moment I am fortunate that no one I am close to is suffering. Words, reading and writing them, have therapeutic effects I know. So I did a little research and quickly found that words can change lives for those suffering from dementia.

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Reading and dementia

Get into Reading, organised by The Reader Organisation, is a nationally acclaimed project, a positive health and social care intervention that has been adapted for dementia groups. Two key features of the intervention are the emphasis on serious, ‘classic’ literature, and reading aloud followed by open-ended discussion. I like the determination not to dumb down the material.

Short poems work well for people with dementia it has been found. This is probably because the language is more compressed and striking than prose; they are often contained on one page. Many of the participants in the groups studied were of the generation that learned poetry by heart in schools and even those with the most severe dementia could recite poems they learned at school.

The Reader Organisation has researched the effects of Get into Reading with people suffering from dementia and found

  • improved mood for 86% of readers
  • greater concentration for 87% of readers
  • increased social interaction for 73%
  • less agitation for 86% of readers

‘Isn’t it funny? We come in with nothing and go out with all these thoughts,’ said a reading group member, living with dementia, from Devon.

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Writing and dementia

I came across two projects.

Dementia Authors’ website in our own words was established in 2006 but I couldn’t find out if the project is still active. The process involved Anthea McKinlay, writer-in-residence, assisting the authors to write their care home story book. The gradual approach appears to allow the dementia sufferers to build up their contributions.

A second project is Living Words, run in association with English PEN. The link takes you to a video on the website, showing how the project encourages individuals to develop their own poems. ‘There is a goldmine of words to stir something up’.

You can read a poem written by a participant on the English PEN website here called I’m not used to anything like this.

The therapeutic power of words seems to be without limits. For prisoners asylum seekers and refugees, for individuals …

 

An event

Dementia and the Power of Words at Free Word Centre, London EC1R 3GA on Wednesday 12th March 6.30 – 8pm. Details on the English PEN website here. I wish I could go and hear about the experiences presented on that day.

 

 

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